The Ovarian Cancer Project:: Designing Support for the Human Experience of Disease
A diagnosis changes more than a person's health.
It changes their world.
In an instant, patients find themselves navigating unfamiliar systems, new relationships, difficult decisions and profound uncertainty. They are expected to absorb complex medical information, advocate for themselves, manage shifting family dynamics and make life-altering choices—all while confronting the emotional realities of serious illness.
Yet much of this challenge remains invisible.
While healthcare systems are designed to address the biological dimensions of disease, patients often struggle with an entirely different set of obstacles: the hidden social conflicts that accompany diagnosis, treatment and recovery.
For women facing ovarian cancer, those challenges can be particularly acute.
Partnering with the Susan Poorman Blackie Ovarian Cancer Foundation and The Clearity Foundation, GREEN::HOUSE undertook a year-long exploration of the lived experience of ovarian cancer patients. Our objective was not to study the disease itself, but rather to understand the social and emotional realities surrounding it.
Using our norms-based approach to innovation, we examined the perceptions, expectations and social dynamics that shape how patients navigate their journey from diagnosis through treatment and beyond.
What emerged was a striking insight.
Women facing ovarian cancer were not confronting a single challenge. They were navigating a series of interconnected social conflicts for which few support systems existed.
These conflicts touched nearly every aspect of the patient experience—from learning and decision-making styles to changing family roles, communication challenges, questions of identity, caregiving dynamics and the emotional burden of uncertainty.
In many cases, the distress created by these social conflicts compounded the already significant challenges of the disease itself.
Recognizing that patients needed more than information, we convened patient advocates, healthcare leaders, counselors and other stakeholders to imagine a different model of support—one that addressed the human experience of disease as intentionally as the medical experience.
Together, we designed a framework that would proactively identify and address the social conflicts patients were likely to encounter, providing support before those challenges became barriers to healing and wellbeing.
The result was Steps Through OC, the first program of its kind.
Developed and launched by The Clearity Foundation, Steps Through OC provides women facing ovarian cancer—and their families and caregivers—with free professional counseling, educational resources, referrals and personalized guidance throughout their journey.
Rather than expecting patients to discover support on their own, the program anticipates their needs, helping them navigate the emotional, relational and practical realities of living with ovarian cancer from day one.
The initiative transformed a powerful insight into a tangible system of care, creating a model that recognizes a fundamental truth: treating disease and supporting people are not the same thing.
Reflecting on the engagement, Buck Dodson, President of the Susan Poorman Blackie Ovarian Cancer Foundation, observed::
"The GREEN::HOUSE experience is extraordinary in form, process and outcome. Strategic imagination, thoughtful design and practical execution converge through the team's boardroom-meets-sacred-space approach, and the result is nothing short of transformation. It's a process that calls organizations and actors to go deep, be willing and courageous, and become endlessly curious in order to manifest necessary and revolutionary change."
For GREEN::HOUSE, the project reinforced a lesson that extends far beyond healthcare:
Many of the challenges people face are not simply clinical, technical or operational.
They are human.
And when we learn to see the hidden conflicts shaping people's experiences, we gain the opportunity to design systems that support not only better outcomes, but better lives. ::
Recognizing that patients needed more than information, we convened patient advocates, healthcare leaders, counselors and other stakeholders to imagine a different model of support—one that addressed the human experience of disease as intentionally as the medical experience.
For related reading, see our reports on Health + Social in partnership with USC, Family Van/Harvard Medical School, and Walter Reed Military Medical Hospital.
Editor’s Note:: The Clearity Foundation has joined Ovarian Cancer Research Alliance (OCRA). According to the OCRA website, “With this integration, the collective strength of both organizations will enable OCRA to offer enhanced and expanded services to the ovarian cancer and gynecologic cancer community as a whole.” Further, Steps Through is now Steps 1:1 Counseling. True to our original vision, Steps “provides free professional counseling for anyone facing a gynecologic cancer diagnosis.”